Isolation experienced by women with gestational cancer: could peer support and tailored information be the answer?
- 3 July 2021
- journal article
- research article
- Published by Springer Science and Business Media LLC in Supportive Care in Cancer
- Vol. 29 (12), 7135-7138
- https://doi.org/10.1007/s00520-021-06396-2
Abstract
Women diagnosed with cancer during pregnancy (gestational cancer) are a small but vulnerable population, with experts suggesting they require greater psycho-social support than either other women with cancer or other pregnant women. However, information on their psychological needs remains sparse. This commentary describes our work exploring the psychological needs of women diagnosed with gestational cancer, areas of unmet need we identified, and our recommendations for future programs and research. We conducted in-depth, semi-structured interviews with 23 Australian women diagnosed with gestational cancer in the preceding 5 years. Our findings depicted a group of women for whom cancer diagnosis and treatment had resulted in a sense of isolation and loneliness. Women reported seeking tailored information about their condition and treatments as well as one-on-one peer support with other gestational cancer survivors, which was challenging for them to access and which existing services struggled to provide. To address these unmet needs, innovative solutions may be necessary. Technology has the potential to connect and match women with one-to-one peer support, and research exploring the efficacy and acceptability of such interventions is required. Creative solutions, such as virtual resource hubs monitored or moderated by experts, would potentially meet the information needs of this group. However, as gestational cancer is relatively rare, the development and evaluation of such interventions would require a collaborative effort across multiple sites, as well as international collaboration and data pooling.Keywords
Funding Information
- Western and Central Melbourne Integrated Cancer Service
- Royal Women’s Hospital Foundation
- University of Melbourne Department of Obstetrics and Gynaecology Fellowship
This publication has 18 references indexed in Scilit:
- A review of longitudinal studies on antenatal and postnatal depressionArchives of Women's Mental Health, 2016
- Psychological and Psychosocial Care of a Pregnant Woman with CancerPublished by Springer Science and Business Media LLC ,2016
- One-to-one peer support in cancer care: a review of scholarship published between 2007 and 2014European Journal of Cancer Care, 2014
- Effects of perinatal mental disorders on the fetus and childThe Lancet, 2014
- Prevalence of depression in cancer patients: a meta‐analysis of diagnostic interviews and self‐report instrumentsPsycho‐Oncology, 2013
- Incidence and outcomes of pregnancy‐associated cancer in Australia, 1994–2008: a population‐based linkage studyBJOG: An International Journal of Obstetrics and Gynaecology, 2012
- The experience of pregnancy and early motherhood in women diagnosed with gestational breast cancerPsycho‐Oncology, 2011
- The psychological impact of a cancer diagnosed during pregnancy: determinants of long‐term distressPsycho‐Oncology, 2011
- Systematic review of peer-support programs for people with cancerPatient Education and Counseling, 2008
- Using thematic analysis in psychologyQualitative Research in Psychology, 2006