Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies
- 19 February 2013
- journal article
- review article
- Published by Wiley in Developmental Medicine and Child Neurology
- Vol. 55 (7), 602-609
- https://doi.org/10.1111/dmcn.12091
Abstract
To review the qualitative and quantitative evidence of the benefits of peer support for parents of children with disabling conditions in the context of health, well-being, impact on family, and economic and service implications. We comprehensively searched multiple databases. Eligible studies evaluated parent-to-parent support and reported on the psychological health and experience of giving or receiving support. There were no limits on the child's condition, study design, language, date, or setting. We sought to aggregate quantitative data; findings of qualitative studies were combined using thematic analysis. Qualitative and quantitative data were brought together in a narrative synthesis. Seventeen papers were included: nine qualitative studies, seven quantitative studies, and one mixed-methods evaluation. Four themes were identified from qualitative studies: (1) shared social identity, (2) learning from the experiences of others, (3) personal growth, and (4) supporting others. Some quantitative studies reported a positive effect of peer support on psychological health and other outcomes; however, this was not consistently confirmed. It was not possible to aggregate data across studies. No costing data were identified. Qualitative studies strongly suggest that parents perceive benefit from peer support programmes, an effect seen across different types of support and conditions. However, quantitative studies provide inconsistent evidence of positive effects. Further research should explore whether this dissonance is substantive or an artefact of how outcomes have been measured.Keywords
This publication has 38 references indexed in Scilit:
- The Pediatrician's Role in Family Support and Family Support ProgramsPublished by American Academy of Pediatrics (AAP) ,2011
- A review of the literature on peer support in mental health servicesJournal of Mental Health, 2011
- Parents of Children Newly Diagnosed With Type 1 Diabetes: Experiences With Social Support and Family ManagementThe Diabetes Educator, 2011
- Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based StudyAmerican Journal of Public Health, 2009
- Social Identity, Health and Well‐Being: An Emerging Agenda for Applied PsychologyApplied Psychology, 2008
- Befriending carers of people with dementia: randomised controlled trialBMJ, 2008
- Systematic review of peer-support programs for people with cancerPatient Education and Counseling, 2008
- The Perceived Effects of Parent-Led Support Groups for Parents of Children with DisabilitiesPhysical & Occupational Therapy In Pediatrics, 2002
- A Social Support Intervention for Parents of Children with Juvenile Rheumatoid Arthritis: Results of a Randomized TrialJournal of Pediatric Psychology, 1996
- Parent to Parent programs: A unique form of mutual supportInfants & Young Children, 1995