The National Alzheimer's Coordinating Center (NACC) Database: The Uniform Data Set
Top Cited Papers
- 1 July 2007
- journal article
- review article
- Published by Ovid Technologies (Wolters Kluwer Health) in Alzheimer Disease & Associated Disorders
- Vol. 21 (3), 249-258
- https://doi.org/10.1097/wad.0b013e318142774e
Abstract
The National Alzheimer's Coordinating Center (NACC) is responsible for developing and maintaining a database of participant information collected from the 29 Alzheimer's Disease Centers (ADCs) funded by the National Institute on Aging (NIA). The NIA appointed the ADC Clinical Task Force to determine and define an expanded, standardized clinical data set, called the Uniform Data Set (UDS). The goal of the UDS is to provide ADC researchers a standard set of assessment procedures, collected longitudinally, to better characterize ADC participants with mild Alzheimer disease and mild cognitive impairment in comparison with nondemented controls. NACC implemented the UDS (September 2005) by developing data collection forms for initial and follow-up visits based on Clinical Task Force definitions, a relational database, and a data submission system accessible by all ADCs. The NIA requires ADCs to submit UDS data to NACC for all their Clinical Core participants. Thus, the NACC web site (https://www.alz.washington.edu) was enhanced to provide efficient and secure access data submission and retrieval systems.Keywords
This publication has 2 references indexed in Scilit:
- The Uniform Data Set (UDS): Clinical and Cognitive Variables and Descriptive Data From Alzheimer Disease CentersAlzheimer Disease & Associated Disorders, 2006
- Promoting interactions with basic scientists and clinicians: the NIA Alzheimer's Disease Data Coordinating CenterStatistics in Medicine, 2000