Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of cardiac surgery
- 1 April 2008
- journal article
- review article
- Published by Cambridge University Press (CUP) in Cardiology in the Young
- Vol. 18 (S2), 101-115
- https://doi.org/10.1017/s1047951108002813
Abstract
This review includes a brief discussion, from the perspective of cardiac surgeons, of the rationale for creation and maintenance of multi-institutional databases of outcomes of congenital heart surgery, together with a history of the evolution of such databases, a description of the current state of the art, and a discussion of areas for improvement and future expansion of the concept. Five fundamental areas are reviewed: nomenclature, mechanism of data collection and storage, mechanisms for the evaluation and comparison of the complexity of operations and stratification of risk, mechanisms to ensure the completeness and accuracy of the data, and mechanisms for expansion of the current capabilities of databases to include comparison and sharing of data between medical subspecialties. This review briefly describes several European and North American initiatives related to databases for pediatric and congenital cardiac surgery the Congenital Database of The European Association for Cardio-Thoracic Surgery, the Congenital Database of The Society of Thoracic Surgeons, the Pediatric Cardiac Care Consortium, and the Central Cardiac Audit Database in the United Kingdom. Potential means of approaching the ultimate goal of acquisition of long-term follow-up data, and input of this data over the life of the patient, are also considered.Keywords
This publication has 23 references indexed in Scilit:
- Current Status of the European Association for Cardio-Thoracic Surgery and The Society of Thoracic Surgeons Congenital Heart Surgery DatabaseThe Annals of Thoracic Surgery, 2005
- An attempt at data verification in the EACTS Congenital Database☆European Journal of Cardio-Thoracic Surgery, 2005
- Initial Application in The STS Congenital Database of Complexity Adjustment to Evaluate Surgical Case Mix and ResultsThe Annals of Thoracic Surgery, 2005
- Funnel plots for comparing institutional performanceStatistics in Medicine, 2004
- Survival after surgery or therapeutic catheterisation for congenital heart disease in children in the United Kingdom: analysis of the central cardiac audit database for 2000-1BMJ, 2004
- The Aristotle score for congenital heart surgerySeminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual, 2004
- Risk adjustment for congenital heart surgery: the RACHS-1 methodSeminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual, 2004
- Report of the Coding Committee of the Association for European Paediatric CardiologyCardiology in the Young, 2002
- Report of the Coding Committee of the Association for European Paediatric CardiologyCardiology in the Young, 1999
- The Pediatric Cardiac Care Consortium–RevisitedThe Joint Commission Journal on Quality Improvement, 1994