Psychological aspects and coping in haemophilic patients: a case–control study

Abstract

Summary. Although enormous progress has been made in recent years in the field of haemophilia, some problems still await solution, such as the risk of sudden haemorrhage, the sequelae of haemophilic arthropathy and social activities. We, therefore, carried out a case–control study in which some psychological dimensions (social expectations, tendency to depression, state of anxiety and self‐esteem) were evaluated in a group of 60 haemophiliacs. A control group was formed of 78 healthy subjects matched for age, socio‐economic class and level of education. The methodology used was the administration of self‐assessment questionnaires which investigate and provide a quantitative measure of psychological dimensions. The results can be subjected to statistical analysis. Three self‐assessment questionnaires were used: (i) the Marlowe–Crowne scale, (ii) the Beck Inventory (1978) version modified by Cusinato (1990) and (iii) the S.T.A.I. – form. Our aim was to evaluate: (i) whether there are significant differences in the considered psychological aspects between haemophiliacs and healthy subjects; (ii) whether there is a significant correlation between the psychological dimensions considered in the haemophiliacs and in the healthy subjects. The results showed that the haemophiliacs have a good psychological adaptation to their disease with the exception of their greater tendency to have less self‐esteem than do the healthy subjects. As far as concerns the second aim, we found than self‐esteem correlated with all the psychological variables investigated. This information could indicate the enormous importance that the psychological variable ‘self‐esteem’ plays in haemophiliacs with respect to whether or not they develop depressive disorders and/or anxiety states.