Considerations and costs of disclosing study findings to research participants
Open Access
- 27 April 2004
- journal article
- Published by CMA Impact Inc. in CMAJ : Canadian Medical Association Journal
- Vol. 170 (9), 1417-1419
- https://doi.org/10.1503/cmaj.1031668
Abstract
The disclosure of study findings to participants in research reflects the moral obligation of researchers, founded in the ethical principle of respect for human dignity, to avoid treating human participants as a means to an end. Human dignity is respected through proper procedures of obtainingKeywords
This publication has 17 references indexed in Scilit:
- Disclosure of the right of research participants to receive research resultsCancer, 2003
- Impact on survivors of retinoblastoma when informed of study results on risk of second cancersMedical and Pediatric Oncology, 2003
- Do Patients Participating in Clinical Trials Want to Know Study Results?JNCI Journal of the National Cancer Institute, 2003
- Breast Cancer Screening in Women Previously Treated for Hodgkin’s Disease: A Prospective Cohort StudyJournal of Clinical Oncology, 2002
- The Ethical Analysis of RiskJournal of Law, Medicine & Ethics, 2000
- Breast Cancer and Other Second Neoplasms after Childhood Hodgkin's DiseaseNew England Journal of Medicine, 1996
- Workers' response to risk notificationAmerican Journal of Industrial Medicine, 1995
- Psychological costs and benefits of predictive testing for Huntington's diseaseAmerican Journal of Medical Genetics, 1994
- Perspective on the content of worker notificationsAmerican Journal of Industrial Medicine, 1993
- Pattern of Publication of Ophthalmic Abstracts in Peer-reviewed JournalsOphthalmology, 1991