Prenatal diagnosis and selective abortion: a challenge to practice and policy.
- 1 November 1999
- journal article
- review article
- Published by American Public Health Association in American Journal of Public Health
- Vol. 89 (11), 1649-1657
- https://doi.org/10.2105/ajph.89.11.1649
Abstract
Professionals should reexamine negative assumptions about the quality of life with prenatally detectable impairments and should reform clinical practice and public policy to improve informed decision making and genuine reproductive choice. Current data on children and families affected by disabilities indicate that disability does not preclude a satisfying life. Many problems attributed to the existence of a disability actually stem from inadequate social arrangements that public health professionals should work to change. This article assumes a pro-choice perspective but suggests that unreflective uses of prenatal testing could diminish, rather than expand, women's choices. This critique challenges the view of disability that lies behind the social endorsement of such testing and the conviction that women will or should end their pregnancies if they discover that the fetus has a disabling trait.Keywords
This publication has 37 references indexed in Scilit:
- A child with cystic fibrosis: II. Subsequent family planning decisions, reproduction and use of prenatal diagnosisClinical Genetics, 2008
- Special Supplement: The Disability Rights Critique of Prenatal Genetic Testing Reflections and RecommendationsThe Hastings Center Report, 1999
- Who should be offered prenatal diagnosis? The 35-year-old question.American Journal of Public Health, 1999
- Self-perceived health status and health-related quality of life of extremely low-birth-weight infants at adolescenceJAMA, 1996
- Progress in assessing the long-term outcome of extremely low-birth-weight infantsPublished by American Medical Association (AMA) ,1996
- THE LONG‐TERM EFFECTS OF CHILDREN'S EARLY‐ONSET DISABILITY ON MARITAL ‐RELATIONSHIPSDevelopmental Medicine and Child Neurology, 1996
- Parental and family well‐being in families of children with down syndrome: A comparative studyResearch in Nursing & Health, 1992
- Reactions of Mothers and Medical Professionals to a Film About Down SyndromeArchives of Pediatrics & Adolescent Medicine, 1990
- I. Social, sexual and personal implications of paraplegiaSpinal Cord, 1984
- The unexpected minority - Handicapped children in AmericaInternational Journal of Rehabilitation Research, 1980