Ethical and Practical Issues Associated with Aggregating Databases
Open Access
- 23 September 2008
- journal article
- Published by Public Library of Science (PLoS) in PLoS Medicine
- Vol. 5 (9), e190
- https://doi.org/10.1371/journal.pmed.0050190
Abstract
David Karp and colleagues discuss the ethical and practical concerns that arise when data are shared in aggregated databases.Keywords
This publication has 20 references indexed in Scilit:
- Population Genomics: The Public Population Project in Genomics (P3G): a proof of concept?European Journal of Human Genetics, 2008
- Protecting Medical Record Information: Start Your Research Registries TodayThe Laryngoscope, 2005
- Ownership and Use of Tissue Specimens for ResearchJAMA, 2004
- An Evaluation of the Current State of Genomic Data Privacy Protection Technology and a Roadmap for the FutureJournal of the American Medical Informatics Association, 2004
- When two tribes go to warNature, 2004
- Genomic Research and Human Subject PrivacyScience, 2004
- Coding and Consent: Moral Challenges of the Database Project in IcelandBioethics, 2004
- DNA databanks and consent: A suggested policy option involving an authorization modelBMC Medical Ethics, 2003
- Principles, organization, and operation of a DNA bank for clinical trials:Controlled Clinical Trials, 2002
- Public Attitudes regarding the Donation and Storage of Blood Specimens for Genetic ResearchPublic Health Genomics, 2001