Retrospective access to data: the ENGAGE consent experience
- 24 March 2010
- journal article
- review article
- Published by Springer Nature in European Journal of Human Genetics
- Vol. 18 (7), 741-745
- https://doi.org/10.1038/ejhg.2010.30
Abstract
No abstract availableKeywords
This publication has 9 references indexed in Scilit:
- Children and Population BiobanksScience, 2009
- Genomics and policymaking: from static models to complex systems?Human Genetics, 2009
- Broadening consent—and diluting ethics?: Table 1Journal of Medical Ethics, 2009
- Research on ethics in two large Human Biomonitoring projects ECNIS and NewGeneris: a bottom up approachEnvironmental Health, 2008
- Growing up as a research subject: ethical and legal issues in birth cohort studies involving genetic research.2007
- Ethical issues arising from the participation of children in genetic researchThe Journal of Pediatrics, 2006
- HUGO Ethics Committee Statement on DNA sampling: control and access.1998
- Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicine (adopted by the Committee of Ministers on 19 November 1996). Council of Europe Convention of Biomedicine.1997
- Convention for Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Biomedicine: Convention on Human Rights and BiomedicineKennedy Institute of Ethics Journal, 1997