Patients’ perceived needs of osteoarthritis health information: A systematic scoping review
Open Access
- 16 April 2018
- journal article
- research article
- Published by Public Library of Science (PLoS) in PLOS ONE
- Vol. 13 (4), e0195489
- https://doi.org/10.1371/journal.pone.0195489
Abstract
Optimal management of osteoarthritis requires active patient participation. Understanding patients’ perceived health information needs is important in order to optimize health service delivery and health outcomes in osteoarthritis. We aimed to review the existing literature regarding patients’ perceived health information needs for OA. A systematic scoping review was performed of publications in MEDLINE, EMBASE, CINAHL and PsycINFO (1990–2016). Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Aggregates of patients’ perceived needs of osteoarthritis health information were categorized. 30 studies from 2876 were included: 16 qualitative, 11 quantitative and 3 mixed-methods studies. Three areas of perceived need emerged: (1) Need for clear communication: terms used were misunderstood or had unintended connotations. Patients wanted clear explanations. (2) Need for information from various sources: patients wanted accessible health professionals with specialist knowledge of arthritis. The Internet, whilst a source of information, was acknowledged to have dubious reliability. Print media, television, support groups, family and friends were utilised to fulfil diverse information needs. (3) Needs of information content: patients desired more information about diagnosis, prognosis, management and prevention. Patients desire more information regarding the diagnosis of osteoarthritis, its impact on daily life and its long-term prognosis. They want more information not only about pharmacological management options, but also non-pharmacological options to help them manage their symptoms. Also, patients wanted this information to be delivered in a clear manner from multiple sources of health information. To address these gaps, more effective communication strategies are required. The use of a variety of sources and modes of delivery may enable the provision of complementary material to provide information more successfully, resulting in better patient adherence to guidelines and improved health outcomes.Keywords
Funding Information
- National Health and Medical Research Council (#1073284)
- National Health and Medical Research Council (#1065464)
- National Health and Medical Research Council (#1065464)
- Australian Postgraduate Award
- Arthritis Foundation of Australia
- Move: muscle, bone and joint health
This publication has 74 references indexed in Scilit:
- Patient reported barriers and facilitators to using a self-management booklet for hip and knee osteoarthritis in primary care: results of a qualitative interview studyBMC Family Practice, 2013
- American College of Rheumatology 2012 recommendations for the use of nonpharmacologic and pharmacologic therapies in osteoarthritis of the hand, hip, and kneeArthritis Care & Research, 2012
- Perceived barriers to guideline adherence: A survey among general practitionersBMC Family Practice, 2011
- Infectious disease management in primary care: perceptions of GPsBMC Family Practice, 2011
- Scoping studies: advancing the methodologyImplementation Science, 2010
- "I know I have arthritis but I don't know what type". Understanding and knowledge of this chronic conditionBMC Musculoskeletal Disorders, 2010
- Epidemiology of OsteoarthritisClinics in Geriatric Medicine, 2010
- Processes of care desired by elderly patients with multimorbiditiesFamily Practice, 2008
- A mixed methods study to investigate needs assessment for knee pain and disability: population and individual perspectivesBMC Musculoskeletal Disorders, 2007
- Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information materialCochrane Database of Systematic Reviews, 2006