The impact of information technology on haemophilia care
- 8 October 2004
- journal article
- review article
- Published by Wiley in Haemophilia
- Vol. 10 (s4), 41-46
- https://doi.org/10.1111/j.1365-2516.2004.00995.x
Abstract
Summary. The past decade has seen an explosion in the use of computers, data programs, hand‐held electronic devices and the Internet. How these advances impact on haemophilia management both now and in the future are discussed from the perspective of haemophilia registries, Internet‐based electronic haemophilia treatment records, and the potential for haemophilia telehealth.Keywords
This publication has 10 references indexed in Scilit:
- Impracticability of Informed Consent in the Registry of the Canadian Stroke NetworkNew England Journal of Medicine, 2004
- Telemedicine Reduces Discrepancies in Rural Trauma CareTelemedicine and e-Health, 2003
- Defining and Improving Data Quality in Medical Registries: A Literature Review, Case Study, and Generic FrameworkJournal of the American Medical Informatics Association, 2002
- Education and debate: Consent, confidentiality, and the threat to public health surveillance * Commentary: Don't waive consent lightly---involve the publicBMJ, 2002
- Research on telehealth and chronic medical conditions: Critical review, key issues, and future directions.Rehabilitation Psychology, 2002
- Telehealth: ‘real life’ implementation issuesComputer Methods and Programs in Biomedicine, 2001
- Public standards and patients' control: how to keep electronic medical records accessible but private Commentary: Open approaches to electronic patient records Commentary: A patient's viewpointBMJ, 2001
- Clinical severity of disease, functional disability and health-related quality of life. Three-year follow-up study of 150 Finnish patients with coagulation disordersHaemophilia, 2001
- Using patient-identifiable data for observational research and auditBMJ, 2000
- Epidemiological survey of the orthopaedic status of severe haemophilia A and B patients in FranceHaemophilia, 2000